Patients wishing to have a National Data Opt Out (NDOO) applied to their data will need to request this via the ‘Your Data Matters’ site or by making a phone call to the number supplied on that web site.
The National Data Opt Out will still allow patients personal confidential and special category data to be gathered from their GP surgery by NHS digital but will be excluded from planning or research activities.
Type 1 Opt Out
Patients may opt out of having their personal confidential data being extracted or shared by the GP practice for purposes other than their individual direct care.
Patients can request that a Type 1 Opt Out is applied to their medical record, this means that before the GP practice wish to share patients details for anything other than the patients individual direct care, they have to exclude those patients from their search criteria.
It also means that when NHS Digital extract patient data from GP practices in order to inform Planning or Research those patients will be excluded from the extraction. It does not apply to the data NHS Digital collects from other health providers.
If you wish to register a Type 1 Opt-out for the first time with us, this should be done by returning this form to us. If you have previously registered a Type 1 Opt-out and you would like to withdraw this, you can also use the form to do this. You can send the form by post or email to your GP practice or call 0300 3035678 for a form to be sent out to you.
If you register a Type 1 Opt-out after your patient data has already been shared with NHS Digital, no more of your data will be shared with NHS Digital. NHS Digital will however still hold the patient data which was shared before you registered the Type 1 Opt-out.